16 Things People With Crohn’s Disease Want You To Know

6. Diagnosis
is different for everyone.

Diagnosis is different for everyone.

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Moeed Majeed

“I was 14 years old when I first became ill, and was officially
diagnosed shortly
after my 15th birthday. The process for me was similar to many
others, long and painful. It was initially suspected that I was
having postviral symptoms, as I had had the flu just as my
symptoms began. Finally, after about four months of regular
visits to my GP, a hospital stay, blood tests, a colonoscopy,
and MRI scans confirmed that I had Crohn’s disease.” – Stephen

“I was diagnosed at 19, in early 2011. It all came about
towards the end of 2010, I became very ill. I was constantly
running to the bathroom, passing all sorts of fluids and losing
a lot of weight. I remember calling my mum and telling her
something wasn’t right with me. She called the hospital and
after a month of tests it was clear what I had. I remember it
pretty vividly – I was sitting at the adolescent clinic, and
the consultant was drawing lots of little diagrams trying to
explain what Crohn’s was. It’s quite funny thinking back to
that moment actually. For me it was a relief that I knew what I
had, and in my head it was the first step to getting myself
better. Obviously it was a bit more difficult than that and
after five years only now am I beginning to feel ‘normal’.” –
Moeed Majeed

“I didn’t suffer long with Crohn’s like most people do; I had
one massive flare-up
where for four weeks it just got worse and worse. Finally it
got to the point just before Christmas this year when I was
unable to eat and had the most crippling
diarrhoea for two weeks straight. I lost 20kg in that two weeks
and the doctors
finally took my blood and admitted me to hospital. I had
surgery as soon as I was admitted to hospital, to drain a
fistula that had developed due to the Crohn’s. Then followed a
week’s worth of MRI, CT scans, x-rays, colonoscopy, and
gastroscopy before they finally diagnosed Crohn’s disease. The
worst part was I was told in the same breath that the Crohn’s
was that severe the consultant wanted to disconnect my large
intestine and give me a stoma [a colostomy bag] right away. So
six hours later, that’s what they did….” – Russell Newman

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